Wednesday, May 28, 2008

Inappropriate? You decide!

Today we had a whole slew of Mayo appointments again. It wasn't our best day out there-- Malachi had to be sedated for his Echo, and that didn't go over so well. BUT- that is not what this post is about. This post is about something I did after our final appointment of the day. John thought it was kindof inappropriate and rude. I disagree- YOU decide!

Our final appointment of the day was with a Dr. from genetics. During the appointment the Dr. wanted to look at Malachi, which meant waking him up, which in turn made him grumpy (see sedated above). I tried to appease him by feeding him. As he was eating he filled his pants (as usual). He seemed to have a lot coming out, and I was concerned that we might have a "blow-out" if I didn't change him soon. The Dr.'s office was more like an actual office space, but did have a cushy bench for us to sit on and the standard patient table. I asked the Dr. if I could change Malachi before we left. He said it was okay, so I did change him. That's it.

So, was it okay for me to change Malachi there in the office, or not? Remember, he eats breastmilk, so the diaper didn't stink. :)

Malachi's Health Update

Malachi was seen today by cardiology and medical genetics. There is little to report... his condition is stable and the things they have been tracking have stayed the same to very slightly improved. The plan is to continue "as-is" until he is seen six weeks from now in mid-July.

Saturday, May 17, 2008

Life has been crazy!

Hello everyone! I've heard from several people that we need to update the blog... sorry it's taken so long! Life has been especially crazy for me this past week as my 5th grade class went on their big Eagle Bluff trip; it's 3 days and 2 nights of non-stop learning and fun. I didn't spend the night with them, however; my team covered for me so that I could come home at nights. That was good, but I was out of the house from 7:30am until 7:30pm. Oh! And John was awesome about making sure Malachi was taken care of. :)

Malachi's dedication on Saturday night was wonderful. Here's a picture from the night. It's not terribly clear, but it's all I've got. Maybe John's mom got one that is better that I can post later on.

Here are some other pictures I thought I would share. Things continue to go well with Malachi, health-wise. He did manage to catch a little cold in the last week, but he's done really well with it, so no complaints!

This is Malachi completely wiped out after his first day at daycare.

I just think this picture is cute. He also happens to be wearing an outfit we bought right after we found out I was pregnant last June.

These 2 are the closest I've gotten of smiles while I actually have the camera.

Friday, May 9, 2008

Baby Dedication

Hello Friends,

I just thought I'd let you know that Malachi is being dedicated at church this weekend! If you are interested and able to come, we'd love to see you. This will happen at the 5:30pm service at Christ Community Church. Maybe we'll see you there!

Saturday, May 3, 2008

May 1st Appointment

Malachi saw his cardiologist again this past week -- Thursday. There is little new to report other than the oxygen therapy is having a small positive effect on his lung pressure. So for at least the next four weeks until his next appointment it will be life as usual with oxygen tubing stretched through our house and our portable tank in our backpack when we leave the house.

We will be able to go to Cancun with him in June if we want as long as we can find an oxygen supplier that will deliver to the resort. Malachi applied for his passport on Thursday so he will be all documented and ready to travel internationally by the end of the month.

We are taking Malachi to Wisconsin Dells tomorrow for a fun night. We had hoped to meet Paul, Kim, Noah, and Micah K. there but they aren't able to join us this time. Sarah and I are looking forward to taking Monday off from work without having to go to Mayo Clinic for the day.