Today we saw Malachi's cardiologist. Things went well as far as going through the motions of the appointment. Sometimes he gets really fussy and it turns into a long day, but they decided to try it without sedation today (yeah!), and so that seemed to really help. Overall his heart looks about the same as the last time. A couple of things are slightly better, and some others look slightly worse, but each thing could just vary from time to time or with and without sedation.
The biggest piece of news is that we are looking at doing a trial period of stopping his oxygen treatment starting this weekend for about 1 1/2 weeks, followed up with another echocardiogram on March 11th. We are excited to see how Malachi does without this extra help! We are especially excited because he started crawling in the past 2 weeks, and is starting to get caught up with the tubing. In fact, tonight I looked over to see him straining his whole body to try to move forward while the tubing was pulled taught behind him. Ooops! It looks like we may have a busy boy on our hands!
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2 comments:
Wow, wait until he's "off the hook!" He'll be everywhere! We'll just keep praying for God to keep surprising us!
Thanks Jennifer. That's exactly what Malachi and I prayed for tonight before he went to sleep. Thank you so much for sharing your story of praying for Malachi with me last week. It sure meant a lot to me!
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